2026 Facing Heterotaxy Together Virtual Conference

Wednesday, September 23rd - Clinician Focused

Thursday, September 24th - Clinician Focused

Friday, September 25th - Family/Caregiver Focused

8am (PDT)-3pm (PDT) each day

IMPORTANT: Once registered, if you do not receive an email with the link to log in to the conference, please email connect@heterotaxy.org

Scientific Agenda

Family Day Agenda

Presenter Bios

  • Tarek Alsaied, MD

    Co-Presenting: Matters of the Heart: Single ventricle palliation vs. 2 ventricle repairs.

  • Nicholas D. Andersen, MD

    Co-Presenting: Matters of the Heart: Single ventricle palliation vs. 2 ventricle repairs.

  • Lori A. Aronson, MD

    Presenting: Multidisciplinary Coordination for a Complex Organ Transplant

  • Matthew Brigger, MD, MPH

    Presenting: Innovative Interventions for Complex Airways

  • Lorna Browne, MB BCH, BAO, MRCPI, FFR RCSI

    Presenting: Innovative Fetal Imaging Techniques

  • Scott R. Callahan, MD FAAP

    Presenting: Insights From a Complex Care Clinic

  • Wendy Chung, MD, PhD

    Presenting: Long Read Genome Sequencing

  • Jennifer Dickson, MSN, RN, NE-BC

    Presenting: Developing a Business Plan for a new Clinical Program

  • Ben Gaston, MD

    Presenting: Videomicroscopy to Assess Ciliary Function

  • Brian W. Gray, MD

    Presenting: Innovative Surgical Procedures: Special Considerations for Heterotaxy

  • Sara Hassan, MD, DABOM, FAAP

    Presenting: Digesting the digestive system: Current recommendations, dietary strategy, and interventions.

  • Steve J. Kindel, MD

    Presenting: Special Considerations for Transplantation in Heterotaxy Patients

  • Saurabh Kulkarni, PhD

    Presenting: Pros & Cons of Xenopus Models to Study Heterotaxy

  • Christina Long, MD

    Presenting: Emergency Room Advocacy

  • Carolina Moore, PhD, MBA

    Presenting: Cardioimmunogenicity & the Thymus

  • Shaine Morris, MD, MPH

    Presenting: Defining Heterotaxy: Multi-system Involvement

  • Caitlin O’Connell, DNP, RN, CPNP-PC/AC

    Presenting: Practical Tips for the Initial Heterotaxy Consultation

  • Michael O'Connor, MD

    Presenting: Insights from Creating the PCD Registry

  • Joscyln Patrick, MSN, APRN, PNP-AC/PC

    Co-Presenting: Matters of the Heart: Single ventricle palliation vs. 2 ventricle repairs.

  • Xi (Charlie) Ren, MD

    Presenting: Apical Out Airway Organoids for Ciliary Assessment

  • Chrissy Salley, PhD

    Presenting: Managing Mental Health When You Carry Ongoing Medical Trauma

  • Stephen P. Sanders, M.D.

    Presenting: Defining Heterotaxy: Cardiac Focus


  • Andrew Spearman, MD

    Presenting: Current Understanding of Hepatic Factor

  • Jo Wilson, MD

    Presenting: Spleen Talk: How does asplenia impact the body?