2026 Facing Heterotaxy Together Virtual Conference
Wednesday, September 23rd - Clinician Focused
Thursday, September 24th - Clinician Focused
Friday, September 25th - Family/Caregiver Focused
8am (PDT)-3pm (PDT) each day
IMPORTANT: Once registered, if you do not receive an email with the link to log in to the conference, please email connect@heterotaxy.org
Scientific Agenda
Family Day Agenda
Presenter Bios
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Tarek Alsaied, MD
Co-Presenting: Matters of the Heart: Single ventricle palliation vs. 2 ventricle repairs.
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Nicholas D. Andersen, MD
Co-Presenting: Matters of the Heart: Single ventricle palliation vs. 2 ventricle repairs.
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Lori A. Aronson, MD
Presenting: Multidisciplinary Coordination for a Complex Organ Transplant
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Matthew Brigger, MD, MPH
Presenting: Innovative Interventions for Complex Airways
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Lorna Browne, MB BCH, BAO, MRCPI, FFR RCSI
Presenting: Innovative Fetal Imaging Techniques
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Scott R. Callahan, MD FAAP
Presenting: Insights From a Complex Care Clinic
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Wendy Chung, MD, PhD
Presenting: Long Read Genome Sequencing
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Jennifer Dickson, MSN, RN, NE-BC
Presenting: Developing a Business Plan for a new Clinical Program
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Ben Gaston, MD
Presenting: Videomicroscopy to Assess Ciliary Function
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Brian W. Gray, MD
Presenting: Innovative Surgical Procedures: Special Considerations for Heterotaxy
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Sara Hassan, MD, DABOM, FAAP
Presenting: Digesting the digestive system: Current recommendations, dietary strategy, and interventions.
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Steve J. Kindel, MD
Presenting: Special Considerations for Transplantation in Heterotaxy Patients
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Saurabh Kulkarni, PhD
Presenting: Pros & Cons of Xenopus Models to Study Heterotaxy
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Christina Long, MD
Presenting: Emergency Room Advocacy
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Carolina Moore, PhD, MBA
Presenting: Cardioimmunogenicity & the Thymus
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Shaine Morris, MD, MPH
Presenting: Defining Heterotaxy: Multi-system Involvement
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Caitlin O’Connell, DNP, RN, CPNP-PC/AC
Presenting: Practical Tips for the Initial Heterotaxy Consultation
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Michael O'Connor, MD
Presenting: Insights from Creating the PCD Registry
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Joscyln Patrick, MSN, APRN, PNP-AC/PC
Co-Presenting: Matters of the Heart: Single ventricle palliation vs. 2 ventricle repairs.
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Xi (Charlie) Ren, MD
Presenting: Apical Out Airway Organoids for Ciliary Assessment
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Chrissy Salley, PhD
Presenting: Managing Mental Health When You Carry Ongoing Medical Trauma
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Stephen P. Sanders, M.D.
Presenting: Defining Heterotaxy: Cardiac Focus
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Andrew Spearman, MD
Presenting: Current Understanding of Hepatic Factor
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Jo Wilson, MD
Presenting: Spleen Talk: How does asplenia impact the body?