1 in 10,000 births will come with a Heterotaxy diagnosis. Heterotaxy is among a plethora of rare diseases that when combined with other rare diseases impacts over 300 million people. https://www.rarediseaseday.org/what-is-a-rare-disease/

Research & Innovation Working Group

8pm-10pm Eastern Time

This is a virtual meeting. If you have any questions or would like to be involved in this group, please email Rene Harrell at rene@heterotaxy.org

Education & Resource Development Working Group

8pm-10pm Eastern Time

This is a virtual meeting. If you have any questions or would like to be involved in this group, please email Rene Harrell at rene@heterotaxy.org

Family Support and Engagement Working Group

8pm-10pm Eastern Time

This is a virtual meeting. If you have any questions or would like to be involved in this group, please email Rene Harrell at rene@heterotaxy.org

Full Advisory Council Quarterly meeting.

8:00PM-10:00PM Eastern Time

Heterotaxy Awareness Day! This is the day to focus on all things Heterotaxy. Awareness leads to understanding. Understanding leads to support. Support leads to funding. Funding leads to a better life and future for all those impacted by Heterotaxy. Together we thrive!

Research & Innovation Working Group

8pm-10pm Eastern Time

Education & Resource Development Working Group

8pm-10pm Eastern Time

This is a virtual meeting. If you have any questions or would like to be involved in this group, please email Rene Harrell at rene@heterotaxy.org

Family Support and Engagement Working Group

8pm-10pm Eastern Time

This is a virtual meeting. If you have any questions or would like to be involved in this group, please email Rene Harrell at rene@heterotaxy.org

Research & Innovation Working Group

8pm-10pm Eastern Time

This is a virtual meeting. If you have any questions or would like to be involved in this group, please email Rene Harrell at rene@heterotaxy.org

Education & Resource Development Working Group

8pm-10pm Eastern Time

This is a virtual meeting. If you have any questions or would like to be involved in this group, please email Rene Harrell at rene@heterotaxy.org

Family Support and Engagement Working Group

8pm-10pm Eastern Time

This is a virtual meeting. If you have any questions or would like to be involved in this group, please email Rene Harrell at rene@heterotaxy.org

Full Advisory Council Quarterly meeting.

8:00PM-10:00PM Eastern Time

Research & Innovation Working Group

8pm-10pm Eastern Time

Education & Resource Development Working Group

8pm-10pm Eastern Time

This is a virtual meeting. If you have any questions or would like to be involved in this group, please email Rene Harrell at rene@heterotaxy.org

Family Support and Engagement Working Group

8pm-10pm Eastern Time

This is a virtual meeting. If you have any questions or would like to be involved in this group, please email Rene Harrell at rene@heterotaxy.org

Heterotaxy Connection and the Heterotaxy Research and Clinical Care Collaborative bring you the second biannual virtual scientific conference: Facing Heterotaxy Together 2026

Heterotaxy Connection and the Heterotaxy Research and Clinical Care Collaborative bring you the second biannual virtual scientific conference: Facing Heterotaxy Together 2026

Full Advisory Council Quarterly meeting.

8:00PM-10:00PM Eastern Time

Research & Innovation Working Group

8pm-10pm Eastern Time

Education & Resource Development Working Group

8pm-10pm Eastern Time

This is a virtual meeting. If you have any questions or would like to be involved in this group, please email Rene Harrell at rene@heterotaxy.org

Family Support and Engagement Working Group

8pm-10pm Eastern Time

This is a virtual meeting. If you have any questions or would like to be involved in this group, please email Rene Harrell at rene@heterotaxy.org