Skip to Content

About Heterotaxy

Researchers and Clinicians

Advocacy and Fundraising

About Heterotaxy

Researchers and Clinicians

Advocacy and Fundraising

About Heterotaxy

Folder: Our Work

Researchers and Clinicians

Folder: Events and Advocacy

Advocacy and Fundraising

Brooklyn’s Story

May 21

Written By Firas Nasr

Hello My name is Firas and I am awesome

Lauren’s Story

Ethan’s Story

Get Connected

Subscribe to our mailing list to stay up to date on upcoming events, new research, and opportunities to get involved.

Bringing together patients, families, and clinicians to advance research, improve outcomes, and strengthen support networks, Heterotaxy Connection is committed to building a world where no one faces Heterotaxy alone.

For Families
For Researchers
For Clinicians
Newly Diagnosed?
Resources
Clinical Trials

Info

About Us
Our Team
The Latest
Contact Us

Work

Stay in the Loop

© Heterotaxy Connection 2025.
All Rights Reserved.
Privacy Policy

Financial Disclosure