The Fetus and Heterotaxy: Prenatal Diagnosis and Counseling
Dr. Sarah Morton discusses considerations in prenatal diagnosis and counseling for Heterotaxy.
Exploring the Major Unanswered Questions in Heterotaxy
In this panel, Sarosh Batlivala, MD, MSCI, Jo Wilson, MD, Elle Geddes, MD, and Adam Shapiro, MD, discuss some of the major unanswered questions facing Heterotaxy researchers and clinicians.
Defining Heterotaxy
Dr. Tal Geva walks through definitions as we seek to classify what Heterotaxy really is.
Heterotaxy as a Whole and Palliative Care: Part 2
Heterotaxy affects the whole body and the whole family, and requires a care team that takes this big picture perspective into account. In this session, Dr. Shih-Ning Liaw and Chelsea Heneghan, MSN, CNP, part of the palliative care team at Boston Children’s Hospital, will explore how palliative care fits into this holistic approach. They’ll discuss what palliative care is, how it differs from and complements other types of medical care, who is eligible to receive it, and how families can access these services.
Heterotaxy as a Whole and Palliative Care: Part 1
Heterotaxy affects the whole body and the whole family, and requires a care team that takes this big picture perspective into account. In this session, Dr. Shih-Ning Liaw and Chelsea Heneghan, MSN, CNP, part of the palliative care team at Boston Children’s Hospital, will explore how palliative care fits into this holistic approach. They’ll discuss what palliative care is, how it differs from and complements other types of medical care, who is eligible to receive it, and how families can access these services.
Defining Laterality
Dr. Stephanie Ware brings up how to define laterality at Facing Heterotaxy Together 2024.
Case Study- Complex Congenital Heart Disease, Lung Disease, and Biliary Atresia
Dr. Prasanna Ramachandran, Dr. Ye Sun, and Dr. Benjamin Zielonka present a Heterotaxy patient with congenital heart disease, lung disease, and biliary atresia at Facing Heterotaxy Together 2024.
Gastroenterology Concerns in Heterotaxy
Dr. Michaela Tracy addresses gastroenterology issues in the Heterotaxy population at Facing Heterotaxy Together 2024.
At the Heart of Heterotaxy
Dr. Emily Bucholz and Dr. Stephen Spurgin talk about the nuts and bolts of Heterotaxy at Facing Heterotaxy Together 2024.
Building a Heterotaxy Program: From Idea to Implementation
Dr. David Schidlow, Caitlin O'Connell NP, and Dr. Stephen Spurgin talk about how to build a Heterotaxy Program at Facing Heterotaxy Together 2024
Keynote Address- Perspectives in Heterotaxy Care
Our keynote speaker, Dr. Gerald Marx, discusses perspectives in Heterotaxy care at Facing Heterotaxy Together 2024.
Caring for the Adult With Heterotaxy
Dr. Christopher Broda discusses care of adult Heterotaxy patients at Facing Heterotaxy Together 2024.
Navigating Heterotaxy Advances, Challenges, and Future Horizons in Research
Dr. Emily Bucholz talks about the progress of Heterotaxy research at Facing Heterotaxy Together 2024.
Respiratory Disease and Ciliary Dysfunction in Heterotaxy
Dr. Andrea Garrod talks about pulmonary issues found with Heterotaxy at Facing Heterotaxy Together 2024.
Practical Considerations of Genetic Assessment for Patients with Heterotaxy
Dr Gabrielle C. Geddes addresses genetic assessments for patients with Heterotaxy at Facing Heterotaxy Together 2024.
Planning Surgery of Complex Congenital Heart Disease in Heterotaxy
Dr David Hoganson talks about how to plan for heart surgery for patients with Heterotaxy atFacing Heterotaxy Together 2024.
Case Study- Primary Ciliary Dyskinesia and Asplenia
Drs. Vincent Lavoie and Sundus NoorSaeed MBBS discuss a Heterotaxy case of a patient with Primary Ciliary Dyskinesia and Asplenia Facing Heterotaxy Together 2024.
Cilia and Respiratory Dysfunction in CHD with Heterotaxy- Is it Undiagnosed PCD?
Dr. Celia Lo discusses pulmonary issues within the Heterotaxy community
Immunologic Management in Heterotaxy and Asplenia/Polysplenia Syndrome
Immunologic Management in Heterotaxy and Asplenia/Polysplenia Syndrome
A Nurse Practitioner’s Role in the Heterotaxy Program
A Nurse Practitioner’s Role in the Heterotaxy Program